Today was a rough day. No rougher than most days around here, but I feel like the world crashed down for a little bit.
For about 6 or 7 weeks I have had many suspicions that my little Liam had Aspergers syndrome. He's off, different, odd. Don't get me wrong. I love that little Spiddy kid! But he never has been easy to love.
He cried all the time as a baby.
I MEAN CRIED.
All day long.
All night long.
He cried, cried, and then cried some more. When he wasn't crying he was spitting up. Then he would get right back to all that crying he missed, while he spit up for 30 seconds.
I had taken him into see the Doctor this morning. He has some really dry patches of skin on his body and they needed to be looked at. While we were there Spiderman pulled a "Liam" (thats what we call it when Liam throws a fit for longer than 15 minutes). Y'all, that kid screamed for a full hour at full volume. He would not let anyone touch him, look at him, I couldn't even comfort him. Normally I'm the only one who can comfort him in times like that, but he didn't even want me by him.
After the Doctor saw this episode, he started asking me things.
1) Does he act like this often? (are you effing kidding me... he does this multiple times a day)
2) How does he do with textures. (he doesn't, I have to make sure everything is uber soft and has NO tags in them for his cloths, and food wise there is only about a handful of things he likes eating with out a fight)
3) Does he obsess over anything? (oh like Spiderman? YES!!! and he lines things up and rocks him self)
4) Does he talk? (duh, of course he does.)
There were a ton more, but with all the crying I've been doing, I can't remember what else he asked.
I know that this isn't a death sentence for him. He is healthy and alive and living. But to know my little man will always be labeled... Thats what kills me.
For more information about Aspergers Syndrome go to my friend GAP Baby! She is a friend I have had since elemtarty school, and has been great to me!
Friday, May 14, 2010
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8 comments:
I love you sweetie! Remember, you are not alone. So many people love and care for you. Liam will always be Liam...nothing changes except maybe for the better if we find you the right doctor.
Forget the you are not alone!! All you need to remember is this, our VP had asperger's and no one knew...
I forget how long we have been friends, love you!!
Oh hon I am so sorry. Try to remember that while this is earth shattering it's also gonna bring some answers and solutions.
I mean you've made it this far with him on just instinct and now that you are getting some answers and solutions it will get better.
Don't forget we are all labeled in one way or another. Remember how I was the slut in high school dating the gay guy? LOL. Not to make light of the situation, just trying to make you smile.
I love you and that sweet boy and if course I'm always here for you guys!
Hey There! I found your blog through J's blog (GAP Baby). I don't know anything about your son (age, symptoms, etc) but I am an early childhood specialist and have seen lots of kids on the autism spectrum. There are lots of great services and interventions to help these little ones integrate more appropriately. I also don't know where you live. Anyway, feel free to email me or whatever if you'd like to talk. Bottom line: it's tough, but he WILL be ok, and so will you:). Good luck!
I dont know if it is that I am just so close to Liam - but Ive always just seem him as just Liam. That will never change. I would never label him just like you would never label my kids as the "ITP kids". I love you so much and Li. xoxoxoxoxo
Krystal, Faith is awesome!! She is my friend and we are actually having lunch together in a few weeks-meeting up in Tucson! She is fabulous and I'm so glad she is willing to help you!! :)
Oh Krystal! I so feel like I've gotten to know you guys from Ashley and from your blog. I'm thinking of you guys and we are all here for you know matter what!
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